Single Moms Raising Autistic Sons


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Wednesday, October 26, 2011

Anxiety in Autistic Children by Ryan Rivera


Ryan Rivera found my blog and the post I had written about Griffin's anxiety so he asked me if I could publish this article and I gladly agreed to do so. As far as my knowledge and experience goes with Griffin this article rings true but I cannot claim to guarantee all his methods. Do read on because I feel that it is very informative.


5 Modern Techniques to Relieve Anxiety and Improve Comfort in Autistic Children
Persistent anxiety is a common problem with autistic children. Stress and anger often manifest themselves into serious anxiety issues, and without the right treatment, this anxiety can take its toll on the quality of life of you and your child.
Traditionally, anxiety disorders are treated by therapy. While cognitive behavioral therapy has shown benefits for children living with anxiety disorders, the communication and interpersonal issues associated with autism may make it less effective as a long term strategy. That is why researchers are developing new techniques to try to combat anxiety in children with autism spectrum disorders.
Causes of Anxiety in Those with Autism Spectrum Disorders
Children with autism tend to experience greater levels of anxiety than typically developing children. There are many potential causes of anxiety, and the more anxiety a child experiences, the more they are at risk for persistent anxiety issues in the future. Some potential causes of anxiety include:
  • Lack of Routine – Children with autism are much more comfortable when they have a regular routine. If something breaks that routine – either because of a move or a change in the household or because no routine has been successfully established – it can cause the child to experience considerable stress that may become persistent anxiety.
  • Frustration – Autistic children are often trying to communicate and can be frustrated when they are not understood or their needs are not being met. Frustration is a powerful emotion, and the energy they experience may manifest as anxiety.
  • Fear – Like frustration, fear and confusion can also be powerful emotions that may increase feelings of anxiety. Any type of strong negative emotion has the potential to become excess and misplaced energy that can cause your child to experience anxiety. Fear may also be caused by too much sensory information.
  • Socialization Difficulties – Children with autism often struggle with forming friendships. The act of socializing may cause its own frustrations and anxiety, but exacerbating the problem is the lack of perceived social support that some autistic children experience. Psychological studies emphasize the importance of social support with anxiety and other disorders.
  • Family Stress – If you are experiencing stress of frustration, your child may easily pick up on it. Autistic children may be easily affected by the family dynamic, and the more they are sensing stress for you or your partner, the more it may affect them.
Most children experience minor levels of anxiety in these situations, and it does not develop into an anxiety disorder. But if the anxiety becomes more common and consistent, your child may have developed a serious anxiety disorder, and treating that anxiety is an important part of creating a better quality of life for your child, and for you.
Developments in Anxiety Treatments for Children with Autism
Several organizations and researchers have been looking into effective ways to treat anxiety in children with autism spectrum disorders. Like most activities, their success depends largely on your child’s ability to work with the program. The most important thing is to find a program that your child will adjust to, because with autism there is no such thing as a guaranteed solution. However, many of the following activities and therapies may be useful for improving recovery.
  • Surf Camp
Surf camps are one of the most interesting new developments in anxiety reduction for autistic children. During the year, children attend a camp with trained surfers to learn to surf, both with others and one on one. The camps have shown success in improving self-esteem and providing children with an outlet that may decrease their anxiety.
Parents are often allowed to attend, which may improve bonding and give parents a potential activity to complete with their children. Surf camps are meant to provide a stress-free outlet that could have potential long lasting benefits.
  • Compression
Most parents of children with autism are familiar with compression. Children with autism often have an interesting sensory processing system that differs from non-autistic children. It’s been found that compression (sometimes referred to as “deep touch” or “deep touch pressure”) has calming effects on many autistic children.
Placing pressure on the shoulders, elbows, feet, fingers, and other joints is able to improve the flow of sensory information to the central nervous system, which helps children focus and decreases their need to provide their own type of stimulation.
Parents are easily able to perform compression techniques using their hands, but research is also being conducted on machines that may be able to provide more beneficial and balanced compression around the child’s body. A hug machine developed by Dr. Temple Grandin in 1965 has been used in some treatment programs, and modifications are still in development for similar devices that may help reduce anxiety in the future.
  • Body Brushing
Body brushing is similar to compression. It was developed as a therapy technique for ADHD but has shown benefits for children with autism. Using a special soft brush, you or a trained therapist will rub the brush firmly against the child’s skin. Research has shown that body brushing for 5 minutes a day can have a lasting calming effect for as long as two or three hours depending on the child. Body brushing needs to be done several times a day to have the maximum effect. Also, it’s important that you only brush the correct areas. The arms, legs, back, shoulders and feet are the best areas for the body brush. Brushing other areas (the face, stomach, or the neck) may only cause discomfort.
  • Modified Cognitive Behavioral Therapy
Traditional cognitive behavioral therapy has been effective for non-autistic children, so researchers have been developing similar techniques for children with autism spectrum disorders. Most strongly resemble their traditional counterparts, but are more likely to integrate relaxation techniques and focus on social issues. It’s also been shown that effective cognitive behavioral therapies may improve overall social functioning and initiation, and it especially useful for children with high functioning autism spectrum disorders. Families are also included in most childhood CBT techniques.
  • Play Therapy
Play therapy has also had success as a treatment option for childhood anxiety. Play therapy involves simple interaction with a child, where the therapist plays with toys or blocks along with the child. The child then shares their problems (frustrations, stress, etc.) through the toys, interacting with the therapist in a way that reveals some of the issues that are bothering them. Once those problems are shared, the therapist then discusses those issues with the child while the two continue playing.
There are several variations of play therapy. Studies have shown that block therapy, most commonly referred to as LEGO Therapy, works very well with autistic children. While generally designed to improve communication and social competence, LEGO therapy also appears to also reduce anxiety.
Addressing Anxiety in the Home
One of the main causes of anxiety in autistic youth is persistent anxiety in the home – especially anxiety with parents and other children. That is why family therapy and addressing your own stress and anxiety issues is one of the best things you can do for your child.
It’s also important that your child be surrounding by a supportive and educated environment so that their needs are understood, both at the home and at school. Before you can hope to handle your child’s anxiety issues you must be able to address your own, and those of the people that surround your child on a regular basis.
The Importance of Addressing Childhood Anxiety in Autistic Children
Childhood anxiety is a serious problem – both in autistic and non-autistic children alike. In the past, anxiety has been treated like a temporary problem, especially in traditionally developing children. Children with anxiety are expected to grow out of their anxious issues as they get older, and little is done to address their needs with the expectation that these children will learn how to cope with general fear and anxiety and live a healthy life as an adult.
But studies have shown that even in traditionally developing children, the long term outlook for kids with anxiety disorders is somewhat discouraging. While some do recover, many also go on to developing more serious problems as adults, including depression. As a parent of someone with autism, it’s important to make sure that your son or daughter is treated as a child, because you do not want to introduce another potential difficulty in your child’s development.
Finding a Treatment That Works For Your Child
Childhood anxiety is already a serious problem. When it affects a child with autism, it is important to seek out effective treatment options. Surf camp, compression, and other methods of keeping your child calm are effective, and therapy has an excellent long term outlook, but the key is finding something that works for your child, and paying attention to any new solutions for general and social anxiety. Every day there is research designed to locate new ways to help autistic child adjust and cope, and any one of these methods may be an effective way to reduce your child’s anxiety.
About the Author: Ryan Rivera has spent his life dedicating himself to research and treatment into anxiety disorders and recovery. To learn more, visit www.calmclinic.com’>www.calmclinic.com.

Thursday, October 06, 2011

Working Towards Progress

We are expecting some new changes next week when the Family Preservation team come to our home in order to help us learn how to co-operate to get Griffin on the bus without so much friction between us. Some days it is just impossible to get him out of bed, dressed, and out the door to the bus. It is time that I get some help other than just the Intuvin because he still has some aggressive outbursts and everything that I have tried just doesn't work.

I think that riding the bus is important for him because he can learn social skills with his peers, granted that it is not a mainstream bus it is still instrumental  in helping him learn how to be more independent and to cope with situations that might arise while away from mommy. He is quite fond of the bus driver and assistant so he does look to them for support.

I had a meeting with Griffin's teacher and he explained to me how Griffin has been doing in class. He is on the borderline of being "at risk" but we are taking steps to make some changes to help him turn that around. Mr. Kirk has given Griffin a lot of support and I feel that he has gone that extra mile that none of his teachers has done since moving to the lower 48 from Alaska. Griffin had the ideal situation in Anchorage so I am grateful to finally be getting our heads above water now.

Wednesday, September 28, 2011

RIP Michael

My precious and most beloved brother of only 41 years passed away in his sleep Sunday night, he left behind a very devoted wife and two kids. Michael has had a series of seizures of unknown cause and left him with considerable brain damage and it is my understanding that he had one in his sleep causing a fatal stroke.

Michael and I were best buddies growing up and would often gang up on my sister Lisa who was left to watch over us while both parents worked to make ends meet. We had a lot of fun together, there were many fond memories that I will never forget. Michael was the most kind and considerate man that I have ever known and was a great role model for his kids. he showed nothing but respect to his wife. I have always been proud to be his sister.

When I became a teenager and had interest in boys we kind of drifted apart subsequently I moved to Washington state on the other side of the country.Many years have passed and for the past 4 years I have lived back from whence I came to be closer to my family.

I don't think that so far Griffin has any concept of death and that he will never see his uncle Michael again or why so many people are sad and crying. I have attempted to find a way of helping him but he just doesn't seem interested. So I just let it go and will wait to see if he has any questions.

Thursday, September 08, 2011

Waiting for Changes

I have been in such a brain fog and in such pain and barely able to function so I have not been online at all, not even to check my e-mail. I don't know what has been going on but today I feel better after a month or so. I think that all that has been going on has been either my fibromyalgia or the meds that I have been taking and stopped, or something else but I believe that I will be here more now because I have missed the blogsphere and all my facebook friends too.

Griffin has been going through some changes and some of that he expresses by lashing out and I hate it for him because I think that a great deal of it has to do with the fact that he can't find the right words to use when dealing with emotions. I have started him on Intuniv again and he is now on the 2mg once a day so we haven't seen any difference yet. In the meantime I patiently await a transformation because using rewards doesn't work anymore and taking away privileges doesn't either.

Griffin has all male teachers this year and I think that he really likes that and responds well since he has no other male influences in his life now. My precious little guy has told me that he was bullied at school so I had a meeting with his teachers and the autism specialist for the district to get down to the root of the problem. Griffin let us know that the bully was from last year but he saw him in the hallway this year. It wasn't until later that day while at the psychologist that I found out that the bully's name is Clinton and he is in Griffin classroom but he could not articulate exactly what the other boy said to him.

Maybe what the boy said was not abusive to an NT (us) but is hurtful to Griffin because he doesn't understand or maybe the boy said something and laughed and embarrassed Griffin...funny that I find myself using that as an example because Griffin has told me quite firmly that he doesn't get embarrassed and I wonder if we are on the same page.

I try to not get too angry about the bully situation yet until I find out more from Griffin and  how it is affecting him. He has been lashing out all summer so the hostility that he has is not directly related to the bullying exclusively if at all.

Saturday, July 02, 2011

Home from Camp

I was so happy to see my handsome little guy come through the door of the assembly hall of the camp. Last year he was reserved but gave me lots of big hugs asking the counselor if he could stay another day. But this year he was not only reserved by didn't really give me big hugs and seemed rather upset and wanted to leave right away. He didn't want to stay and wait for his turn in the talent show, but the counselors had reassured me that he was doing fine after the initial transition time  Sunday - Tuesday then he warmed up and seemed to get over his homesickness. I think that social stories are the key to getting him through these situations so much more smoothly and it so simple.
Here is Griffin dancing to Party in the USA , it so awesome because he would not have done that this time last year. He has grown so much in such a short period of time.




I haven't read all the notes that the counselors wrote but will share some of them after I do. As soon as we left the entrance of the camp Griffin was like a vulture searching out for a little tidbit of meat but where could it be? KFC? No, Wendy's that's it! He ate and became so quiet I had to keep checking to see if he was still back there. I am just so grateful to have him home again and to be able to give him hugs.

Monday, June 27, 2011

Autism Camp 2nd year

Griffin started his autism camp yesterday and it hasn't been easy for either one of us. He has had anxiety and a nervous stomach since before we even left home and the counselors are calling and talking to me about Griffin and his day telling me that he is participating in the activities but still has a stomach that hurts. They let Griffin talk to me for awhile and I have no idea if what I have said has helped him or not but I do try to remain positive. It is so hard for me to let go and to allow him to grow up it is true what they say that letting go takes much more strength than holding on.

I am trying to stay busy by cleaning the apartment and I plan to get back to reading my friends blogs again and maybe read all of those Discover magazines that I subscribed to and haven't had the time to read. I won't be exercising because I fractured my heel and strained several muscles in my left foot and I have no idea how I did it! I don't drink alcohol anymore so I wasn't drunk and if I had done it while sleepwalking it would seem that the pain would have awakened me. I have been wearing a walking cast for almost 3 weeks and have not noticed any improvement so I am going for a checkup on Wednesday.

Sunday, June 12, 2011

Transition from School to Summer

Maybe you have been wondering where I have been and I can kind of answer that question, time has just gotten away from me. I have been struggling with a bout of apathy where it doesn't matter to me if anything gets done....including this blog. I have taken care of the household duties and taken care of Griffin very well but outside of that everything that I used to enjoy is gone. I am working on it with my doctor.

Griffin is doing very well now that he is over that hump of a transition of school being out. Besides, it was only about 2 days worth of meltdowns and I think that today will be okay (crosses fingers & toes). I decided to not put him in the YMCA day camp because the ratio was so high, it was 20 children to 1 adult and that is way too high for Griffin. So for the summer he will have gymnastics on Tuesdays, OT on Wednesdays, pottery class on Thursdays, Speech on Fridays, Swimming on just about every day at the YMCA and Sundays the Unity Center.

It is time to go make breakfast for my handsome little prince. Hope that you all are having a smooth transition from school to summer. I plan to check out your blogs soon.

Monday, May 09, 2011

Mother's Day Weekend

Here is the beautiful card that Griffin made for me that I will always cherish. It has three "special coupons" that are for hugs and kisses, for making mommy breakfast (watch out!) and for finding flowers. The card itself says: I love you very much. I love lots of things about you. Love, you son Griffin. Isn't that just adorable? It sure did melt my heart and make me cry because I was so touched by something so precious that my child made just for me, my first Mother's Day card.

Griffin and I went to South Carolina to see my mom and dad for the weekend and it would have gone smoothly had I not forgotten the bag that held everything in it and I didn't find out until we had arrived and mom asked me where our bag was. I said "Oh Shit" I placed my hands on either side of my mom's face and looked her straight in the eyes and said, "I forgot our bag, I left it in front of the apartment." I felt like such an idiot because it contained all of our medications and clothing that we needed. But it would be the medications that would be the real problem.

I had to call the on-call doctor to get him to call in to the 24 hour pharmacy for my meds because by this time it is past 10 p.m. and we get to the pharmacy around midnight. Once there I find out that my meds for 2 days and 2 nights is going to cost me about $143.00 just for 4 different meds and about 10 pills!!!! Is that not insane? I am glad that I have insurance and I don't have to pay for those meds on an everyday basis. It was all worth it for the time that Griffin got to spend with his Nana and Papa. I also enjoyed spending time with mom on Mother's Day and watching how happy Griffin is when he is around her/them and seeing my dad too. I can't say that I would do it over again but I wouldn't trade it for anything.

While we were there Griffin, Nana, and I ventured off towards the lake to go fishing because they live right on the lake but I am sad to say that it was unsuccessful. Griffin lost his patience after going through the woods and then waiting for the hook to be baited with corn (that's all we had) so by the time he got the rod in his hands he slung it through the air and slammed it down on the dock and lost the corn. We tried once more he got angry so we called it a day and left the scene. I guess that I know now that Griffin does not have the patience for fishing and there is no reason to invest in fishing equipment of any kind if he is going to get upset because he has to do some waiting while the fish hook is being baited or anything of that sort. Not only that but he is going to have to wait for the fish to bite and I don't know if that is going to upset him too. I think that maybe the novelty of fishing has worn off but we shall see.

Saturday, April 30, 2011

Growing Up

Griffin came home the other day with a photo of a little girl that he had taken out of his back pack. I asked him who that was and he said it was Amanda a little girl who rides his bus, a friend of his and I thought that it was so darn cute! Griffin has a little girlfriend and I am not even sure that he even knows that he does but that's okay anyhow. My little guy is getting so big I can't believe it.

I have been going to the gym regularly and started free weights last week, I am so excited to become lean and ripped! Stopped being severely manic because of 1000 mg. of Depakene and now am just hypomanic but I am just getting 4 hours of sleep a night but when one is hypomanic one is able to function with such little amounts of sleep because of having so much extra energy. Don't know if my doc will prescribe more sleep meds since yet another has failed me or if he will let me function on 4 hours which I doubt.

Griffin wants to go fishing so badly but I don't know what to do, how to go about setting up everything. Our neighbor knows how to I think but I want it to be something that Griffin and I do alone. Maybe I will invite our neighbor to go the first trip to teach me how and then tell her that I want to do it alone with Griffin after that but then I will feel bad because Nikki wants to go fishing all the time and talks about how she wishes that she could go. I guess that she could come along sometimes and Griffin and I could do it alone sometimes that seems like the happy medium.

Sunday, April 24, 2011

Rest & Relaxation


Griffin and I have been just taking it easy the past couple of days, since there's no school for me things have been so much better. Griffin had only a half day on Friday and yesterday we went to feed the ducks and to the park to play on the playground. He actually wanted to stay and socialize with the kids at the lake when feeding the ducks, talking to them about the kinds of ducks and geese, he observed a little boy and his father fishing asking them questions, and talked to a family about their dog. Oh yea and he meandered up to a picnic table peeking at their food, I guess that he was hungry and curious, and they offered him some cookies asking me first if it was okay. Once we were at the playground Griffin played mostly by himself as I had Abby with me, it was too hot to leave her in the car so we walked her and brought her along.

Today we went to Unity Center, we were late but we made it and Griffin was patient for the most part sitting through the service with me. He got thirsty and needed a cookie which they happened to have nearby. We don't really have any other plans but it is gorgeous outside so we will be spending some time out there today on the playground playing with the neighborhood kids and walking Abby.

Friday, April 22, 2011

Time for Change

I am officially quitting school and it is a big relief for me because all the stress of it was causing me to become overwhelmed and made my Fibtomyalgia flare up really bad, which is a sure sign that something is wrong. I know that I made the right decision because I feel 95% better today after having just made the decision yesterday. That's how the mind and body work. That is how stress works and I am not letting it effect me like that any longer!

It was just too much for me to try to manage a household, to give Griffin the attention he needs and deserves, to keep this place clean, to get to all the doctors appointments and therapy sessions, and to get my school work done and I know that people do it all the time even as single parents but that's okay but I just have a harder time than most people.

Now I will have more time to write in the blog again and to read all my friend's blogs YIPEE!

Friday, April 08, 2011

He Couldn't Hurt a Flea!

How can anyone think that my child would ever hurt me? I mean like really hurt me as in harm me. That is what my neighbor thinks and says that she worries about me as Griffin gets older. She says that Griffin bullies me sometimes which maybe is what she is seeing is when he is having a meltdown and I know that IF he lashes out then I need to get it under control but he hasn't done that in a long time and she has never seen him do it either.

What she witnessed the other day was at the craft store when he had a meltdown and all he was doing was crying at first and then he hugged her kind of hard but he was attempting calm himself and apparently she was seeing him as being aggressive. He was upset initially because he said that I pushed him and I told him that I was sorry that I didn't remember pushing him that I didn't mean to but he kept saying that I pushed him but before the chaos started he had wanted some candy by the register and I told him no that it wasn't okay and that was when he lost it and told me that I had pushed him. So was he upset over the candy or the pushing? Was he having the meltdown because of how I handled the situation and because I said no or was it because he had felt that his space had been violated by me and he just couldn't handle that (not typical but possible)?

I would like to take this time to thank my dear friend Amy who has taken the time to help me and I just got off the phone with her and didn't even tell her how wonderful she is and how much she means to me...what a friend I am! I LOVE YOU Girl!!!

Wednesday, April 06, 2011

Griffin Wasn't Feeling Well

This is kind of old news now but I was so busy tending to him and letting him use the computer while he was at home that I didn't get around to posting about it on the blog. But Griffin had to have an ultrasound two days ago and lab work done yesterday to see what was going on with this pain that he has been having in his abdomen.

It started out about a month ago as heartburn and I let it go about a week because I thought that he may have been just making it up trying to get out of school and homework but when I realized that he was not kidding then I took him to the doctor who prescribed Prevacid to be taken twice a day which helped his stomach pain but not the pain that he had in the lower part of his abdomen.

I took him again to the same clinic and a different doctor saw him and said that the pain seemed to be over his gall bladder and appendix so he ordered the ultrasound which turned out to be normal and lab work which we will know about tomorrow.

I have kept him out of school because he has been so very lethargic not wanting to do even his favorite activities and seemed to be in a lot of pain but tonight he was quite energetic, running around feeling great and since I am writing this at midnight I think that it is safe to say that I will be sending him to school tomorrow. I might wait until I get the lab results just to be sure and to give him some fun time out of school to go fly his kite but he will be going back tomorrow!

Sunday, April 03, 2011

An Important Letter to the Teacher

I need you, Anonymous, to help me out on this one! I do wish that I knew who you are because you are so wonderful, so kind, and so caring to us, but for now I will just settle for some helpful advice. You were right that I should have gone to observe Griffin in the classroom before signing the IEP because I just found out from Griffin that he does sometimes have meltdowns at school which means that they lied to me. The told me that he doesn't have them at school at all and I, being so trusting and wanting to believe them I suppose, believed them and signed the IEP.

Now I haven't sent the e-mail to the teacher being pissed off that I am but trying to maintain some semblance of professionalism even though I would love to let loose on her and give her a piece of my mind! Here is the e-mail that I have composed after she wrote to me and told me that I could observe Griffin for ONLY 30 minutes in the classroom during reading time:
 
Hi Mrs.   W.

This date will work for me but 30 minutes will not suffice. I would like to observe him for at least an hour in the classroom setting and it doesn't matter what he is doing. 
I need to observe his behavior in the classroom because Griffin has informed me that he does in fact have meltdowns in school sometimes which means that you have lied to me which means that I am very unhappy right now that I signed that IEP! I feel that I was tricked into signing it, that I was rushed through the meeting since I didn't have an advocate and now I will get a lawyer and have someone on my side to advocate for Griffin.

So, (Anon.) and everyone else I need to know how to change this letter because I haven't sent it yet and what should I add to it? I sure hope that you are reading this post soon so that I can send this letter to her soon. I want to get the point across but be cool about it at the same time especially since these letters may be used by lawyers later on if it ever gets to that point heaven forbid!

Saturday, March 26, 2011

Hanging Out with Friends

Here's a couple of pics of Griffin hanging out with his friend and neighbor Isiah who is showing him how to bat and catch the ball...how to play baseball basically without running the bases. He was so patient with him.


Here is a picture of Griffin flying his kite for the first time on Thursday when we went to his school. It was fun until it got caught up in a tree.


Thursday, March 24, 2011

H*E*L*P!!!!

Griffin had a HELLacious meltdown last night and I didn't handle things very well because I slipped and had a cigarette. Yes I had one! It was only one and I was so stressed because his meltdown was horrid he was screaming and crying and no matter what I did I couldn't get him to stop and it was making me crazy! For those of you who don't know, I quit smoking about 8 months ago after smoking for about 25 years so it's a big deal that I slipped and had a cigarette. Griffin was upset because when we were sitting at the computer together and something popped up for an Adobe update so since we use Adobe I clicked on it not knowing what was about to ensue. So we sit there as it is downloading and I click on it again as it asks for permission again and if I agree to the rights and responsibilities so as I am clicking on that Griffin gets upset all of a sudden and burst out in tears to not download anything to the computer. By now it is too late because it is already downloading and I can't stop it and I explain that to him, that there was no way that I could have undone what I have done and that computers need things downloaded to them sometimes because it helps them to work better. But that did not help him at all.

I just didn't know what to do in this situation to help him because the download was already going on and by this time it had already disappeared from the computer completely so I go to the computer to show him that it is gone but it didn't help at all! He is screaming at the top of his lungs and crying and I am helpless. I use what his teacher tells him that if he has a meltdown that I am going to have a meltdown and that didn't help he didn't care by then. I tried giving him lots of hugs but to no avail he wouldn't have it. So if someone has the answer I would love to know what you would have done to make things better because I just don't know.

The meltdown ended eventually, I just waited it out and let him have his space and he calmed down on his own, sometimes that is what I have to do. We did some sensory stuff like rolling him out like a pancake with a big ball he really likes that and big hugs and snuggling. So the ending was good!

I am now taking Doxepin for sleep and it is working better than any of the others have YEAH!!!!! I slept so well last night and zonked out right after Griffin did as I never take my medicine while he is awake. I like this medicine because it works with my natural rhythm of sleep because it causes me to sleep when I am closest to being tired (as I don't generally get tired due to being more manic most the time than depressed) not just when I take the medicine and it doesn't make me sleep too hard so that I am able to sleep lightly enough to wake up if I need to for Griffin. I have the greatest doctor in the world and I am so grateful that he is so tuned in to what I need. My insomnia is really a major obstacle in my life and interferes with any kind of "normal" functioning so it is nice to be able to sleep every night and to wake in the morning feeling refreshed!

Saturday, March 19, 2011

Just a Quick Note

I have a million other things that I need to be doing so I don't have much time to write but I did want to write a little bit for now and catch up later hopefully because I have school. The latest is that Griffin hasn't been back to gymnastics because he hurt his knee at school last week but the doctor said that it was just bruised and okay. I had the IEP (Individual Education Program) and it went well even though I didn't have an advocate there because she couldn't make it. I asked lots of questions and made sure to schedule an observation of Griffin in the classroom. I truly feel that his teachers this year have his best interest at heart and it has shown in Griffin's performance and interest in school. He is concerned about getting his homework completed and looks forward to getting on the bus in the morning and speaks nicely about his teachers when asked. So I don't think that they were trying to pull the wool over my eyes in the IEP and were very sincere. One of his teachers commented that she has really seen Griffin's personality this year and how she loved it because last year was so bad for him and it was because his teacher was miserably horrid! There were several things that I learned about Griffin that I didn't know but I can't write about it right now as Griffin just informed me that he is sleepy so I have to go. Oh and I am now taking Chloral Hydrate for sleep which if a regular person took, one without severe insomnia, well it's what they used to refer to when they said that they slipped someone a mickey.

Wednesday, March 16, 2011

I love him so much and today was a good day as a mom, not every day is though, not every day I am proud of myself. But today was one of those bonding days where we took time together and talked and walked Abby and he wasn't on the computer all the time or watching TV because I restricted it and it was so worthwhile. That is definitely going to be the norm around here from now on and it's back to bed at 8:00 - 8:30 so we can talk and read so that we can have that quality time together like we need. I asked him if he liked many hugs or few hugs and he said few so I won't be giving him too many. He has been having stomach problems so I got him some ginger capsules per Dr. D's request and they seem to help and Griffin told me that he didn't tell Mrs. White, his teacher, that his stomach hurt today at lunch. I think that I am going to take the Prevacid capsules that Dr. P prescribed to the school nurse just for lunchtime so that he won't have a tummy ache during school because they won't give out herbs.


I am up all night literally because the prescription of Lunesta that the doctor gave me yesterday didn't work so I haven't been able to sleep all night and it is now 3:00 a.m. and I need to get Griffin up at 6:00.

Friday, March 11, 2011

Gymnastics

Griffin had his first lesson at gymnastics yesterday and it went so well! His instructor/coach, Miss Vicky, was simply awesome! She gave Griffin all the necessary attention to give him the help that he needed in order for him to enjoy himself thoroughly and to participate in all the different areas. They worked out on the floor doing tumbling, the balance beam, the bars, the spring board, and the trampoline. Griffin was grinning from ear to ear the whole time and laughing throughout and needless-to-say mommy was thrilled. Griffin was a great listener paying attention to all of Miss Vicky's instruction and following the other kids. I decided when I signed him up that he would do best in a class that was younger than him and it ended up working out beautifully. The rest of the class was girls about 5-6 years old who didn't seem to mind that Griffin was older and the only boy, they were just interested in doing gymnastics.

Griffin tried gymnastics when he was about 5-6 years old but he was all over the place and it didn't work out so I am super thrilled that it is working out this time, it is a great outlet for him and good exercise in commitment and the discipline of following instruction in an activity.

Griffin has been in and out of meltdown mode since he got home from school so I am going to have to finish up and publish this post as is, otherwise heaven knows when I will get around to finishing it up. I haven't been very consistent lately as far as finding the time to write in the blog.

Sunday, March 06, 2011

Sometimes the Autism Disappears: watch video

I made a video of Griffin playing and interacting with his neighbor Sharon, you can't even tell that he has autism in this video. Please take a moment and watch it.


This is a great post about getting a break from autism: http://trydefyinggravity.wordpress.com/2011/03/06/take-it-easy/ as I am sure that we all can relate to needing to have just one day to get away from it all.