Single Moms Raising Autistic Sons

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Saturday, January 28, 2012

I am so ANGRY and frustrated with the Intensive Home Care team, I have caught them in lies and their collaboration with the staff has done Griffin nothing but harm. I had to call the school counselor to get the truth about the bullying, he told me that the kids were in fact laughing at Griffin when he got angry and that is exactly what Griffin kept reporting but nobody would listen to him.

I also found out through calling the autism specialist that things were fine with Griffin in class and he loved school until the teacher started making higher demands on him and then Griffin only showed frustration and anger. Interesting how the Intensive Home Care team never mentioned calling either of those experts in order to help Griffin out with his issues, just goes to show how the mother has to be her child's best advocate because if I relied on anyone else they wouldn't have his best interest in mind like I do.

I also had to call Griffin's pediatrician and asked him to communicate with Griffin's pediatric neurologist because Griffin had developed complex tics on top of the simple tics that he has already had and they were getting worse. Kudos to the staff and doctors for being on top of the matter in a day's time they truly care for Griffin and had his best interest and health in mind. However, when I called IHC team I wasn't allowed to talk to the doctor (psychiatrist) who needed to change his medications, or her assistant. One of the team members spoke to me and told me that the doctor said to only give Griffin half of the dose that he had been taking for his whole life and I quickly and adamantly protested because I knew that it wouldn't work. She mentioned that the doctor had to think of liability and I replied that apparently that is all that she had in mind because he had been on the .2 dose of Clonidine since he was 3 years old in Anchorage, Alaska. Every doctor that we have seen since then has agreed that that dosage was correct for him.

I was determined to do what was best for Griffin and found that there was one refill and so I called it in to the pharmacy right away. The team member said that I was going against the doctor's orders but I reminded her that she doesn't know Griffin because she has only seen him twice for about 20 minutes each time so how could she know better than his pediatrician and his neurologist?

All they have done is to make Griffin more insecure and caused him to think that it is okay to not be heard, to not be listened to by his teachers and those who are serving as role models. They have not listened to him when he kept crying out for help where the bullying was concerned and made it seem like it was all in his head. I cannot wait to have these people out of our home and to be able to have our privacy back and to stop being judged and talked about all the time behind my back. It is demeaning and they treat us both like we are idiots and I do nothing right and that all they do is perfect.

I must add that Griffin loves James but I do feel that after the first visit he had been fed judgment about us and started acting strangely the second visit. I do appreciate that he plays with Griffin instead of just focusing on his academics like the girls do. He does have really good ideas.

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