Single Moms Raising Autistic Sons

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Friday, April 11, 2008

The Special Olympics, Fibromyalgia, Surgery For Griffin

For the second year Griffin has participated in the Special Olympics and I think that he had a much better time than he did last year. He participated in more events and seemed to be more comfortable with his environment therefore he was free to enjoy himself and was not affected by the large crowd of people. After everyone had finished their participation they all got on the bus and headed for Cracker Barrel and ate some lunch, I believe that it was a great time for all involved and none of the kiddos had meltdowns and they were smiling the entire time. Griffin did so well with his interactions with his classmates and it was evident that there were certain kids that he enjoys their company because they were affectionate, exchanging lots of hugs and smiling ear to ear.

Just as I was beginning to think that it was all in my past never to be realized ever again, it came back..............the Fibromyalgia that is. I have chronic pain in my entire body, even just to touch my skin hurts and it pervasive going all the way to to my bones and joints. My general practitioner prescribed Lyrica but in the end after trying it for a couple of months, it didn't help me at all. I am so very tired all the time taking frequent naps and waking up feeling just as bad as when I went to sleep. I wake in the morning so early that it is absurd and just furthers my fatigue. I am not able to go back to sleep, strangely enough, for example I woke at 4:00 a.m. and even though I feel exhausted I am just not able to get more rest. I have an appointment with the rheumatologist next week and I hope that there is some solution available for me because several years ago when I had it there was nothing to treat it. I just hate being so grumpy all the time because I feel so darn crappy. It truly interferes with my quality of life and sucks the joy out of day to day living, I am still able to laugh occasionally, how could I not when Griffin is happy nearly all the time and is always being silly and helping his mommy get through the pain by succumbing to the joy and enthusiasm that he exudes each and every day?

I took Griffin to the ENT doctor yesterday and found out that he needs to have his tonsils and adenoids taken out. It will enable him to sleep more soundly and get better rest since he snores so bad and breathes through his mouth all night furthermore he has sleep apnea so I look forward to him getting better rest and I believe that it will improve his quality of life. The surgery is going to be on May 8th (out patient) and the only drawback for him is that he will not be able to participate in activities/exercise for two weeks afterwards.

It is 6:28 a.m. and Griffin just woke up so I better get him ready for school, I will attempt to write again soon and post more pics. Hugs to everyone, have a wonderful day!


gretchen said...

Oh no- I'm sorry to hear about the fibromyalgia! Hopefully science has made advances since the last time you suffered from this. Keep us posted.

I hope the surgery will help Griffin. I know it's scary when your child has surgery (I was a basket case when my boys had tubes put in their ears!). I believe mom-nos' Bud had his tonsils out this year, maybe adenoids also?

Take care and hang in there!

KC's Blog said...

Gosh honey I am so sorry you are hurting and feeling crummy.
I wish there was something that you could take to make you feel better.
Maybe the specialist will have some ideas.
I am so happy to hear that Griffin is such a happy camper and it puts a smile on your face. He's such a darling boy, he lights up a room with that smile.
The surgery will help Griffin so much. His sore throats and snoring will be all better. It really does help alot.
I have been such a slacker when it comes to reading blogs :( I am trying to catch up a bit. K.C. has been a grumpy butt this week and ran me ragged he he.
Love the photo of Griffin, special olympics sounds wonderful.
In AZ. you have to be 8 years old to participate :(

Anonymous said...

oh my gosh-so much is going on with you!!! I will keep you in my thoughts-all will be ok I just know it. G will be SO much happier when they are out-I know many kiddos who have had the surgery and it did wonders. But you also need to take care of yourself-sleep is key-I know how it can just disrupt your whole world. I dont sleep well either-trying to figure out why.

Good Luck!!! You guys are awesome!!!!