Life is not without its challenges but also full of blessings. When I hear my son's laughter all those challenges temporarily fade away: and when I think of the unconditional love that we share, I realize what a precious gift that has been bestowed upon me in this lifetime in which I had never imagined would be so magnificent. The one thing that I am sure to tell him every day is that I love him and that he is exactly the way he was meant to be created..He is PERFECT!
Followers
Thursday, May 21, 2009
Out of School and Taking Medications
His teacher, his shadow, his speech therapist and I are going to have an IEP meeting next week and I am going to request that he have a shadow when beginning the second grade. I just don't think that he is ready to go it alone in what might just be an overcrowded classroom with one teacher. I hope that by then we will have his meds all straightened out and that behaviors will be under control and actually I am hoping that he is either in a private school here or in North Carolina public school system by the beginning of school. There are 8 autism classrooms in the area where I wish for him to go in NC which translates to the fact that they are better trained and also have a great resource in the autism teacher if there were to be any issues in the mainstream classrooms.
I spoke to my dear friend in Alaska who was Griffin's very first therapist to work with him at age 15 months until the age of three and she has faithfully kept up with what goes on with him; she thinks that it is best for him to not be in the classroom because there are probably a lot of changes going on that is bothering him. She was a teacher for many years and told me that this time of year things are more lax, there are things be changed all around. This is true because Griffin was scheduled to not see his speech therapist and math teacher anymore. Even when the changes are small it still effects him.
That is one very legitimate reason why he could be misbehaving so badly. His doctor told me that the Focalin XR would show a difference immediately and that it is not like other meds that need to reach a therapeutic level. So since that didn't work then maybe the Abilify will. I like what Melissa H. said about the thoughts of taking a child off of a drug that helps them cope with their behaviors; she likened it to taking insulin away from a diabetic child. And it reminds me of when people tell me that there is nothing going on with me when I in fact have Bipolar Disorder and could not live without my drugs, yet they dispute that I need anything at all. Griffin is no different, he needs those meds to help him get through the day without hurting himself or somebody else. Without his meds he is angry, totally disorganized mentally/emotionally, and has absolutely no control of himself.
It is a shame when people do not realize how mental illness and instability completely wrecks any quality of life that one might otherwise have. I fought for years to not give Griffin meds for insomnia and it was pure hell for both of us for a long time. We were both a big mess, I had no patience, I was unstable and neither of us had much fun at all during those long months. That was just plain ole stupid! Neither of us need to go without sleep for very good reasons and we both need to be stable so that we can thrive and make progress in our everyday life.
I have to have faith in the medications because the alternative is absurd and I trust his doctors, the ones that he had in Anchorage and the ones here. The way I see it is that if a child of a young age can have chemo and live through it then taking low doses of medication is not going to harm them in the long run. The body is an amazing machine that can take a lot more than some people think that it can. I am a good mother and I feel that I am doing the best for my child concerning meds and the school situation.
We will get through it no matter what, one way or the other.
Tuesday, May 19, 2009
Griffin is Still Having a Hard Time at School
He is fine at home except when he has to take a shower/bath and most times he loses it but will ultimately end up giving in and going through with it. I guess that perhaps he is okay at home because it is his down time and there is not that much required of him except for homework. As far as that goes he does it willingly but usually has to be reminded constantly to stay on task.
My dear friend of mine thinks that maybe because he doesn't like his shadow that it could be stemming from that and just branching out to others. I am just so glad that there are only a few days left of school but what about next year? How do I get things straightened out before then? How can I prepare him for second grade where he will have no shadow to help him cope?
Today was the first day of the increase in the Focalin XR up from 10mg to 15mg so I guess that we shall see as it gets to be at a therapeutic level. I feel so bad for him because I just think that he is feeling weird/miserable and that is part of the problem, he just loses control of his emotions. Goodness knows that I have been through that with my Bipolar ups and downs with meds that weren't right for me and needed to be adjusted.
Melissa, do you think that these symptoms could be from the Bipolar and that maybe we need to adjust his Abilify? Tina, what do you think about it? Do you think that any of this could be something other than a medicine issue?
I need some advice!!!!!!!!!!!!!!
Thursday, May 14, 2009
I Figured it Out and it was So Simple!
Tuesday, May 12, 2009
How do I Fix Blogrolling List????
School will be over in about 2 weeks and I will be so glad, I love to have Griffin home with me just like we used to have when we home schooled, he is so delightful........well, most of the time. Tonight he totally lost it when I told him that it was time for bath or shower so after an exhausting 20 minutes I told him that it was time to go to bed early and he was actually happy with that. Tomorrow, I told him, he is taking a shower/bath as soon as he comes home from school, no more nonsense!
If any of you have a comment to make on whether I should medicate Griffin over the summer, I would like to know. In one way it helps him to have a better quality of life with few to no meltdowns but on the other hand they are drugs and what are they doing to his liver and kidneys? I take several meds which I never ever miss and I can only imagine what my body thinks about it, in the long run. I have to have them and not having them is not an option. But for Griffin, I just don't know what to do. Please help me out!
Wednesday, May 06, 2009
Redhead....What do ya Think?
Griffin has been out of school for a couple of days due to the fact that he couldn't hold food down in the evenings when he came home. The problem was that the Focalin XR quelled his appetite and he hardly ate a thing for breakfast and lunch so by the time he got his appetite back in the evening, his stomach wasn't used to having food and subsequently rejected it.....all of it. So I took him off the medicine and slowly got him used to food again, although he vomited several times in the interim he finally has held down some yogurt and is back on track. I gave him half his usual dose of the Focalin XR this afternoon because we went to pick up his homework from the school and I wanted him to be able to focus in order to finish it all.
He spent a good part of the day at his NaNa's and PaPa's yesterday and at one point he laid down and asked her to lie down with him and he rested for awhile. The poor guy must have been exhausted from vomiting and diahrrea and not getting any nutrition for almost three days. Now he is in a great mood doing his homework and later I will try him on a bit of bland food to see if he can hold it down. I think that tomorrow I will try him on half a dose and see if he has an appetite or not. When they have lunch I will make his favorite food and take it to him to be sure that he eats something.
Friday, May 01, 2009
Oh No.....Meltdowns Again?
I went to see his doctor today and we decided to take him off the Focalin XR for the weekend and see what kind of results that yields, I don't know for sure but I think it's going to be a rough couple of days. The thing about it is that no matter what we are doing or where we are he still has them even if it's something going on that he likes.
Several hours after writing the first two paragraphs, when I went to pick up Griffin his shadow and teacher told me that he did great today and that they think that maybe the meltdowns were caused by him having congestion that he no longer has today. So far, since he has been home for about an hour now, everything is okay and I haven't given him a second dose of the Focalin XR.
We'll play it by ear and see what happens over the weekend, maybe it was from him feeling a bit under the weather........who knows?
Tuesday, April 28, 2009
Griffin and His Dance Performance
The photo is of Griffin at bedtime with his Doodle Pro and his VHS tape, he has been drawing and writing like crazy and he has perfected a lot of what he does because he will write/draw them over and over until he is satisfied with the outcome. He seems to find it very relaxing because he does it throughout the day and into the night and he is always so mellow when he is using the Doodle Pro.
He had a major meltdown today, his shadow called me and asked if he had had his meds in the morning and he had. So I called his doctor and he said that we just don't know enough about autism to figure out what causes meltdowns sometimes but for sure it wasn't the new medicine causing it. If he does it again and it is so severe then we might consider increasing the Abilify for severe mood swings. He has been taking it for a year so it might be time for a change or it could have just been a sensory overload.
Griffin is lying down about to go to sleep so I am going to go tell him goodnight and see if he will let me snuggle with him until he sleeps.
Sunday, April 26, 2009
Superstar Student for a Week
Wednesday, April 15, 2009
You are so Right Melissa H, Thank You my Dear Friend
Sunday, April 12, 2009
One Must be Familiar with the Circumstances in Order to Form an Opinion
Saturday, April 11, 2009
Sharing What Works for Parents and Teachers of Young Children with Behavior Difficulties
Friday, April 10, 2009
How 1 Young Autistic Man Runs a Business
Joe Steffy is off to Overland Park, Kan., this week to do a PowerPoint presentation on his business, Poppin' Joe's Kettle Korn. He's a 23-year-old small-business man with a goal of $100,000 in sales by 2012. Joe also has autism and Down syndrome and is nonverbal. When he gives his talk, he will push buttons on an augmentative speech device to deliver the words. His audience will be parents who fervently hope their own special-needs children will be able to work, too.
Joe's parents, Ray and Janet, of Louisburg, Kan., didn't agree with the assessment of the school district in which they lived previously, which had said Joe would never be able to work or live independently. "I'm one who can easily get ticked off," says Ray. "That ticked me off. We saw more in Joe than that. We set out to prove to the school that he had capabilities." They came across kettle corn while on a trip to Alaska and realized that all that popping, scooping, and serving suited Joe's love of work.
The path to Joe Steffy's success was not an easy one; Ray Steffy worked closely with Dave Hammis, an advocate for self-employment for people with disabilities in Middletown, Ohio, who trains business owners, government employees, and parents on how to make use of state and federal programs. The Steffys wrote up a business plan and helped Joe secure $25,000 in grants from programs like Social Security Administration'sPlan to Achieve Self-Support program (PASS).
In 2005, Poppin' Joe's Kettle Korn was born. Sales have grown from $16,000 in 2005 to $50,000 in 2008, both from selling at festivals and from delivering popcorn to local outlets. Joe has five part-time employees, and his parents help out with driving and other tasks. "Pop and everyone that works with him knows whatever Joe wants to do you let him do, because he's the boss," Ray says. "If he wants to pop, he'll shove Dad out of the way and pop."
If the business stays on track, it should be grossing more than $100,000 in three years, and the Steffys are seeking a business partner who can work with Joe to manage the business. Joe is no longer on Social Security disability payments; instead, he pays state sales tax and state and federal income tax. He rents his own house and is helped by caregivers who are paid by a state program.
"It's been hard work, from the standpoint of physical work," says Ray Steffy, who is 67. "But a parent with a child like Joe has a choice. You can either kick in and do this kind of thing, or you can sit and fret emotionally with the amount of energy, worrying about what's going to happen to them."
The payoff for that effort, as far as the Steffys are concerned, has been priceless. They see their son make a local popcorn delivery, accept payment, fold it, and put it in his pocket. When he walks out, his dad says, Joe looks 3 inches taller than when he walked in.
US News. Written by Nancy Shute
Wednesday, April 08, 2009
Spring Break
Sunday, April 05, 2009
Yahoooo!!! Somebody Sees My Side of Things and Tells the Truth
Anonymous wrote: (see what I wrote in the previous post about this comment)
Please stop blaming his past teacher. As a teacher of children with autism this will do you or your child no good. Educators may make mistakes but are not the cause of your child's behavior. When I see this with parents who have children with behavioral issues it is so frustrating and really helps noone.
April 05, 2009 11:12 AM

Anonymous said...To clueless Anon.- what is frustrating are "teachers" who are teaching kids on the spectrum who have NO CLUE. If you read closely regarding this case in particular that teacher had no behavior plan for this child, no clue how to break down skills and teach in an errorless manner using positive behavior practices (which is required by FEDERAL LAW) and she used extremely reactive and punishing procedures. "Teachers" such as that should stop pretending to understand how to teach kids on the spectrum and should STOP denying the kids FAPE under IDEA. Furthermore, there is an old saying in good ABA teaching in particular (and in all methods of teaching kids on the spectrum)--when a child is having problems "look to the teaching, not the child" meaning it is up to the teacher or therapist to have a complete understanding of behaviors and erroless teaching and be delivering it in a way so the child is successful. Teachers who have no clue to the extensive needs of autism spectrum children end up increasing their behaviors and then who do they blame? The child of course. Really, do the kids a favor and get out of the industry. You are destroying the kids who need experienced instructors.
April 05, 2009 2:13 PM
To clueless anon. Please read the other message I posted and get the hell out of the industry if this is your attitude towards parents and their children on the spectrum!